Writing this blog’s about me page, triggered thoughts of what it is that defines us. I’m still not sure. I know that I am more than being somebody’s mother or daughter or wife. But to a woman these things are important in much the same way that males define themselves by their jobs or hobbies.
Furthermore, how are we changed by experiences? Do experiences like having a child with CP or having a loved one die change the way we are or do they merely change the way we react to certain things?
I know that I react to adversity by anger. It is the way my father reacted and it is the way Marco reacts. So, I believe that it is a genetic trait. If we don’t get angry, get worried. It means our spirit is broken
In a way, anger has been my saving grace. Anger has kept me going. But anger can also take on a life of its own – demanding precious energy – until you don’t know why and at whom you are angry anymore. And until you think to yourself that you can finally understand why somebody would pick up a machine gun and start shooting randomly. Then you know that anger has served its purpose and that you need to let it go.
I always thought that I’m a pessimist. It turns out I am really an optimist. I had hope for Loren – that he could live a GOOD life – right until the day he died.
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Having kids tend to change us per se and many people will tell you that it is not always for the better.
Mostly I feel that having kids is a humbling experience. Sometimes I feel stripped to the bone.
I changed in many ways. First of all were the physical changes:
I’m carrying 10 kg more in weight, my hair has greyed, my face has new lines and my skin sag. I have aged. Talking to a close friend recently she pointed out that I was beginning to walk with a stoop. I used to carry Loren as if I was trying to fold my body around him to protect him and the habit has remained.
Bit by bit all my ideals have been sacrificed. I wanted homebirths, breastfeeding, being a SAHM. I wanted kids free from chemicals. I wanted home schooling, family meals around a table, little or no TV. I wanted – most of all – to protect my children from hurt. And at this – which is the most important ideal of all – I failed most miserably of all. My parents have brought me up to believe that you can achieve anything if you just work hard enough. I know now that that is not true. Sometimes you can work at something with everything you have and you still fail.
So, how has that changed who I am? I’ve become less sure of myself. I am more fearful. I have less energy. I cry more easily. I’m more apathetic. I’ve seen the worst side of everyone close to us as a family and in some instances my trust in people has been shocked beyond belief.
But there are not just negatives. I am also softer, less inclined to judge. I appreciate the good things more. I have learned that there are truly good people out there. I know that I am strong because I’m weak. I know that I can survive anything. I have finally learned to live in the moment. I’ve become humble. I’ve become grateful for the sum total of my experiences – good or bad. I’ve learned to go with the flow.
In many ways I‘m still the same. I still dislike unfairness. I cannot understand that people follow the pack blindly and I will never just accept the status quo.
I miss feeling invincible. But do I want to be exactly the same person I was before? Certainly I’d like my figure back! And if somebody could take away this deep aching sadness, I’d also appreciate it…
But overall? No.
So. Here I am.

